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Understanding Sanfilippo Syndrome: Awareness and Support
1:13
Understanding Sanfilippo Syndrome: Awareness and Support
17.3K views7 months ago
TikToktaci.lynn
Understanding Sanfilippo Syndrome Type B in Children
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Understanding Sanfilippo Syndrome Type B in Children
23.8K viewsNov 11, 2022
TikToktaci.lynn
The very beginning of our Sanfilippo journey💜 #lydiamarie #lovinglydia #sanfilippotok #sanfilipposyndromeawareness
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The very beginning of our Sanfilippo journey💜 #lydiamarie #lovinglydia #…
3.9M viewsApr 27, 2024
TikTokhopeforlydia
Girl With Sanfilippo Syndrome Makes Precious Memories With Family ❤️
0:52
Girl With Sanfilippo Syndrome Makes Precious Memories With Fa…
6.7K viewsOct 21, 2024
YouTubeCaters Clips
Liv has Sanfilippo Syndrome, it’s a rare neurodegenerative genetic disorder that causes regression of all skills, talking, walking, and feeding themselves. It is life shortening with a life expectancy of 12-20. #fyp #sanfilipposyndrome
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Liv has Sanfilippo Syndrome, it’s a rare neurodegenerative genetic di…
5K views4 months ago
TikToksaving_liv
Tips for having a successful Make-A-Wish trip with Sanfilippo Syndrome
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Tips for having a successful Make-A-Wish trip with Sanfilippo Syndr…
132 views7 months ago
YouTubeCure Sanfilippo Foundation
FDA Response to Ultragenyx UX111 AAV Gene Therapy for Sanfilippo Syndrome Type A
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FDA Response to Ultragenyx UX111 AAV Gene Therapy for Sanfilippo …
100 views3 months ago
YouTubeMCQ Pedia
1:27
How we do it … Planning for long-distance travel with Asher (Life wit…
457 views7 months ago
YouTubeCure Sanfilippo Foundation
0:55
Suggested accounts
339.6K viewsApr 22, 2021
TikToklove_logan07
0:55
Daughter's Battle With Sanfilippo Syndrome 😔
14.2K viewsAug 1, 2024
YouTubeCaters Clips
1:11
Olivia + Family on Instagram: "Sanfilippo Syndrome causes “co…
821.6K views9 months ago
Instagramsaving_liv
1:16
Instagram
277.4K views5 months ago
Instagramsaving_liv
1:57
Logan Sanfilippo Syndrome Progression and Family Journey
8.4M viewsJan 4, 2024
TikToklove_logan07
2:51
Entendiendo el Afecto Pseudobulbar en Sanfilippo
1.1M views1 month ago
TikToksaving_liv
3:14
Understanding Sanfilippo Syndrome in Children: How to Approach Par…
2.7M viewsJun 19, 2024
TikTokhopeforlydia
1:12
Olivia + Family on Instagram: "Liv has Sanfilippo Syndrome, a neuro…
411.8K views3 months ago
Instagramsaving_liv
6:16
Liv’s Journey to Sanfilippo Syndrome Diagnosis
279.1K views7 months ago
TikToksaving_liv
1:23
The three phases of Sanfilippo Syndrome, aka childhood Alzheim…
180.2K views6 months ago
TikToksaving_liv
Understanding Sanfilippo Syndrome and Pacifier Syndrome
668.7K viewsJan 23, 2022
TikToklove_logan07
2:22
Sanfilippo Syndrome Explained: Education Focused Insights
45.1K views3 months ago
TikToksaving_liv
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