Teen Battling Sanfilippo Syndrome, aka ‘Childhood Alzheimer's’
17:23
YouTubeInside Edition
Teen Battling Sanfilippo Syndrome, aka ‘Childhood Alzheimer's’
Sixteen-year-old Logan Pacl from Washington is living with Sanfilippo syndrome. This rare neurodegenerative disorder, caused by a gene defect, affects the brain and spinal cord. Children lose skills, suffer seizures and movement disorders and experience pain, according to the Cure Sanfilippo Foundation. The disease, also referred to as ...
1.5M viewsNov 16, 2023
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Logan Sanfilippo Syndrome Progression and Family Journey
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TikTokJan 4, 2024
Liv has Sanfilippo Syndrome, it’s a rare neurodegenerative genetic disorder that causes regression of all skills, talking, walking, and feeding themselves. It is life shortening with a life expectancy of 12-20. #fyp #sanfilipposyndrome
Liv has Sanfilippo Syndrome, it’s a rare neurodegenerative genetic disorder that causes regression of all skills, talking, walking, and feeding themselves. It is life shortening with a life expectancy of 12-20. #fyp #sanfilipposyndrome
TikTok4 months ago
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