Understanding Sanfilippo Syndrome: Awareness and Support
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Understanding Sanfilippo Syndrome: Awareness and Support
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The three phases of Sanfilippo Syndrome, aka childhood Alzheimer’s. Life expectancy is mid to late teens, with no current approved treatment options. #sanfilipposyndrome #fyp #genetics #childhoodalzheimers #specialneedsmom #childhooddementia
1:23
The three phases of Sanfilippo Syndrome, aka childhood Alzheim…
180.2K views6 months ago
TikToksaving_liv
Logan Sanfilippo Syndrome Progression and Family Journey
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TikToklove_logan07
Liv has Sanfilippo Syndrome, it’s a rare neurodegenerative genetic disorder that causes regression of all skills, talking, walking, and feeding themselves. It is life shortening with a life expectancy of 12-20. #fyp #sanfilipposyndrome
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Liv has Sanfilippo Syndrome, it’s a rare neurodegenerative genetic di…
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TikToksaving_liv
Sanfilippo Syndrome Diagnosis Update: Sadie's Journey Explained
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Sanfilippo Syndrome progression of facial features. #sanfilipposyndrome
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Sanfilippo Syndrome progression of facial features. #sanfilipposyndrome
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YouTubeSaving Liv
Tips for having a successful Make-A-Wish trip with Sanfilippo Syndrome
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Tips for having a successful Make-A-Wish trip with Sanfilippo Syndr…
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YouTubeCure Sanfilippo Foundation
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This is how we do it … Creating Alex’s nighttime routine (Life with …
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Entendiendo el Afecto Pseudobulbar en Sanfilippo
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Olivia + Family on Instagram: "Sanfilippo Syndrome causes “co…
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Instagram
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Suggested accounts
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😛😛
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Inside Edition on TikTok
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The very beginning of our Sanfilippo journey💜 #lydiamarie #lovinglydia #…
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Liv’s Journey to Sanfilippo Syndrome Diagnosis
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Sanfilippo Syndrome Explained: Education Focused Insights
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