Batten disease is a rare inherited condition that affects brain development and function. CLN3 disease is the most common ...

A fundraiser for a rare neurodegenerative disorder affecting a four-year-old girl with a connection to racing was highlighted during the 2025 Indianapolis 500. Helen’s Pink Sky Foundation was featured ...

For the three out of every 100,000 children who are born with Batten disease, the diagnosis is one of the most devastating that a family can receive. Emily Blackburn, 32, found out in March 2023 that ...

Doctors told Gordon Gray his daughters would not live to see their 12th birthday — -- The Hollywood couple who started a foundation to quickly fund research to find a cure for Batten Disease, ...

Identical twins Freddie and Louie Dawkins, who turned 20 in September, both lost their sight aged three and were diagnosed ...

SIOUX FALLS, S.D. (KELO) — We recently brought you a story on a 2-year-old Brookings girl battling a rare and fatal genetic disease. Sloan Murfield was diagnosed with Batten Disease on January 20.

On Wednesday's episode of The Act, Hulu's newest (incredibly addicting) TV show, Gypsy Rose Blanchard 's health issues weren't on full display-instead, it focused on one specific event: a cosplay ...

BEST FOR THEIR CHILD. A DAY OF CARING AND A DAY OF HOPE FOR FAMILIES BATTLING A TERMINAL NEUROLOGICAL DISEASE FOR THEIR CHILDREN, GOVERNOR JIM PILLEN DECLARED JUNE 9TH AS BATTEN DISEASE AWARENESS DAY ...

Grayson Naff is 7½ years old. He’s in first grade. He lives in Tipp City. He loves his 22-month-old brother Beckett, video games, YouTube and his friends at Nevin Coppock Elementary School — not ...

LINCOLN, Neb. (KOLN) — Despite the unrelenting rain Saturday morning, dozens of friends, family and supporters gathered at Eagle Elementary for a 5K run/walk to support a member of their own community ...

(MENAFN- GlobeNewsWire - Nasdaq) The Batten Disease pipeline presents opportunities with over 10 companies developing 12+ drugs in varied clinical stages. Novel approaches, including gene therapy and ...

Teraysa's mum tells Sun Health she initially thought her daughter might be autistic - before horror symptoms struck A MUM who thought her little girl “would be reading by one” is now watching her ...