A MUM who thought her little girl “would be reading by one” is now watching her slowly fade away after she was diagnosed with a devastating childhood disease. Stacey Sprason, 41, was shocked to ...
Researchers at Baylor College of Medicine, Jan and Dan Duncan Neurological Research Institute at Texas Children's Hospital and King's College London have discovered a treatment that improves the ...
The Batten Disease pipeline presents opportunities with over 10 companies developing 12+ drugs in varied clinical stages. Novel approaches, including gene therapy and enzyme replacement, address unmet ...
Learn all about batten disease, its symptoms and treatment options. Understand how this rare neurological disorder affects children and progresses over time ...
VICTORIA, Minnesota (WCCO) -- A Victoria, Minnesota, family is channeling their heartbreak into hope. When Dan and Stephanie Born welcomed their daughter Helen into the world, they felt their family ...
Since its launch in April, the foundation has dedicated nearly $1M for research and rallied a growing community EDEN PRAIRIE, MN / ACCESS Newswire / October 16, 2025 / Helen’s Pink Sky Foundation will ...
EDEN PRAIRIE, MN / ACCESS Newswire / October 16, 2025 / Helen’s Pink Sky Foundation will take center stage at one of the world’s premier sporting events this fall, with its logo set to appear on BWT ...